BILL ANALYSIS                                                                                                                                                                                                    Ó




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          |SENATE RULES COMMITTEE            |                        AB 959|
          |Office of Senate Floor Analyses   |                              |
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                                   THIRD READING 


          Bill No:  AB 959
          Author:   Chiu (D), et al.
          Amended:  9/4/15 in Senate
          Vote:     21  

           SENATE GOVERNMENTAL ORG. COMMITTEE:  12-1, 7/14/15
           AYES:  Hall, Berryhill, Block, Gaines, Galgiani, Glazer,  
            Hernandez, Hill, Hueso, Lara, McGuire, Vidak
           NOES:  Runner

           SENATE APPROPRIATIONS COMMITTEE:  5-0, 8/27/15
           AYES:  Lara, Beall, Hill, Leyva, Mendoza
           NO VOTE RECORDED:  Bates, Nielsen

           ASSEMBLY FLOOR:  69-0, 6/1/15 - See last page for vote

           SUBJECT:   Lesbian, Gay, Bisexual, and Transgender Disparities  
                     Reduction Act


          SOURCE:    Author

          DIGEST:    This bill enacts the Lesbian, Gay, Bisexual, and  
          Transgender Disparities Reduction Act and requires four  
          specified state entities - the Department of Health Care  
          Services (DHCS), the Department of Public Health (DPH), the  
          Department of Social Services (DSS), and the Department of Aging  
          (CDA) - to collect voluntary self-identification information on  
          sexual orientation and gender identity, beginning no later than  
          July 1, 2018. 

          Senate Floor Amendments of 9/4/15 include additional legislative  
          intent language; add language holding the departments harmless  
          when collecting data under certain circumstances; add a  
          provision exempting the collection of certain data that would  








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          permit identification of individuals or would result in  
          statistical unreliability; and, make other minor clarifying  
          changes.  

          ANALYSIS:   Existing law requires a state agency, board, or  
          commission that directly, or by contract, collects demographic  
          data as to the ancestry or ethnic origin of Californians, to use  
          separate collection categories and tabulations for each major  
          Asian group and each major Pacific Islander group.  This data is  
          required to be made available to the public in accordance with  
          state and federal law, except for personal identifying  
          information, which shall be deemed confidential.

          This bill:

          1)Requires, to the extent permissible by federal law, the DHCS,  
            the DPH, the DSS, and the CDA, in the course of collecting  
            demographic data directly or by contract as to the ancestry or  
            ethnic origin of Californians, to collect voluntary  
            self-identification information pertaining to sexual  
            orientation and gender identity.

          2)Provides that the four state entities identified above may,  
            but are not required to, collect demographic data under the  
            following circumstances:

             a)   Pursuant to federal programs or surveys, whereby the  
               guidelines for demographic data collection categories are  
               defined by the federal program or survey.

             b)   Demographic data is collected by other entities, as  
               specified.   

          3)Requires collected data to be reported to the public in  
            accordance with state and federal law, except for personal  
            identifying information, which shall be deemed confidential  
            and shall not be disclosed.

          4)Prohibits reporting of data that would permit identification  
            of individuals or would result in statistical unreliability.   
            Also, permits aggregate data reporting, as specified. 









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          5)Stipulates that the four state entities identified above may  
            use information voluntarily provided about sexual orientation  
            and gender identity only for demographic analysis,  
            coordination of care, quality improvement of services,  
            conducting approved research, fulfilling reporting  
            requirements, and guiding policy or funding decisions.

          6)Makes it explicit that all information about sexual  
            orientation and gender identity collected pursuant to this  
            bill must be used only for purposes specified in this Act and  
            requires the four state entities identified above to come into  
            compliance with the provisions of this Act as soon as  
            possible, but no later than July 1, 2018.

          7)Finds and declares that due to the sensitive general nature of  
            data relating to sexual orientation and gender identity and  
            the need to protect the safety of those who would provide  
            voluntary self-identification information pertaining to their  
            sexual orientation and gender identity, it is necessary to  
            prohibit the public disclosure of personal identifying  
            information that would allow the identification of an  
            individual who provided voluntary self-identification  
            information pertaining to sexual orientation and gender  
            identity.

          8)States legislative intent that the state departments  
            identified above utilize existing work and research,  
            including, but not limited to, referencing research on  
            promising and community-defined practices and stakeholders  
            when developing questions to collect voluntary self-identified  
            information pertaining to sexual orientation and gender  
            identity.  In addition, encourages the departments to urge  
            other entities to voluntary collect information pertaining to  
            sexual orientation and gender identity.

          9)Contains various legislative findings and declarations  
            relative to the limited data available for Lesbian, Gay,  
            Bisexual, and Transgender (LGBT) communities and due to  
            historical systematic exclusion of data collection of LGBT  
            communities, significant disparities in their health and  
            welfare have been prolonged compared to the broader community.  
             Also, declares that it is in the best interests of the state  








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            to respect, embrace, and understand the full diversity of its  
            residents and to collect accurate data to effectively  
            implement and deliver critical state services and programs.  

          Background

          State government agencies routinely collect demographic data on  
          race, ethnicity, gender, and disability on a wide variety of  
          state forms and surveys.  The purpose of this data is to help  
          better understand disparities in underserved communities.   
          Current law only requires any state agency, board, or commission  
          that directly, or by contract, collects demographic data to  
          separate the collection of this data by major Asian groups.  The  
          law is silent on demographic data collection based on sexual  
          orientation or gender identity.  

          Purpose of AB 959.  According to the author's office, this bill  
          seeks to reduce health and well-being disparities for LGBT  
          communities by ensuring that sexual orientation and gender  
          identity data is collected on a statewide basis by key  
          government agencies that deal with health and human services.   
          The author's office states, "Due to the systematic exclusion of  
          data collection of LGBT communities, significant disparities in  
          their health and welfare have been prolonged compared to the  
          broader community.  LGBT communities face disproportionately  
          high rates of poverty, suicide, homelessness, isolation,  
          substance abuse, and violence, and low rates of health  
          insurance.  These issues are more prevalent for youth and  
          seniors, communities of color, and transgender and undocumented  
          communities.  Collecting voluntary data on sexual orientation  
          and gender identity is a necessary first step to understand the  
          extent to which LGBT communities are experiencing disparities  
          and whether government programs are effectively reaching LBGT  
          individuals in need of care and assistance."

          The author's office emphasizes that the recent amendments are  
          intended to provide greater flexibility for the identified  
          departments in AB 959 to comply with the requirements of this  
          bill.  In addition, certain provisions hold the identified  
          departments harmless if any future programmatic changes that  
          include meeting the requirements of this bill are rejected by  
          the federal government.  Furthermore, certain other provisions  








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          hold the departments harmless in cases where the departments do  
          not collect the data themselves but instead receive their data  
          by other entities that collect the data directly.

          Prior Legislation
          
          SB 280 (Lieu, 2014) would have authorized, until January 1,  
          2015, the application form for insurance affordability program  
          coverage to include additional voluntary questions on sexual  
          orientation and gender identity or expression.  Also, would have  
          required, effective January 1, 2016, the application form to  
          include voluntary questions regarding demographic data  
          categories, including race, ethnicity, primary language,  
          disability status, sexual orientation, gender identity or  
          expression and other categories recognized by the federal  
          Secretary of the Department of Health and Human Services.  (Died  
          on Senate Appropriations Committee Suspense File)

          AB 1208 (Pan, 2013) contained similar provisions to SB 280  
          (Lieu, 2014).  (Vetoed by the Governor who stated, "the state  
          does not need to mandate these requirements in law as DHCS and  
          Covered California already have the authority to modify these  
          types of questions on the form, and they can work constructively  
          with stakeholders to decide what is necessary to change for 2015  
          and beyond.")

          SB 416 (Kehoe, 2011) would have required the statewide Health  
          Interview Survey and the Behavioral Risk Factor Surveillance  
          System to include specified information related to sexual  
          orientation or gender identity.  (Vetoed by the Governor who  
          stated, "what particular questions should be in these health  
          surveys is better handled by the current process, not the  
          Legislature or the Governor.") 

          AB 1878 (Lieu, 2010) would have required all California agency  
          forms that ask for demographic information to include sexual  
          orientation or gender identity.  (Died on Assembly  
          Appropriations Suspense File)

          FISCAL EFFECT:    Appropriation:  No    Fiscal Com.: Yes    
          Local:  No









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          According to the Senate Appropriations Committee:
          
           DHCS: Costs to implement this bill would not be significant.   
            Programming costs to add new fields into California Healthcare  
            Eligibility, Enrollment, and Retention System would be  
            approximately $170,000 (General Fund, federal funds, and/or  
            special funds).


           DPH: One-time costs of approximately $165,000 (General Fund)  
            to make programming changes to Birth and Death Registration  
            systems; ongoing costs for Center for Health Statistics  
            Information related activities would be minor and absorbable;  
            one-time programming costs of approximately $160,000 (General  
            Fund) to update the Genetic Disease Screening Information  
            System; and, ongoing costs of approximately $105,000 (General  
            Fund) related to printing an enlarged form, but only some of  
            these ongoing costs can be attributed to this bill. 


           DSS: Significant one-time costs to the extent that county  
            welfare department information technology systems would need  
            programming changes to provide for the collection of sexual  
            orientation and gender identity information. (General Fund)


           CDA: Minor and absorbable costs to implement this bill  
            however, there could be significant costs if certain systems  
            need to be updated to allow for this functionality.  (General  
            Fund and/or federal funds)

          SUPPORT:  (Verified 9/8/15)

          AIDS Legal Referral Panel
          Alcohol Justice
          American Civil Liberties Union of California
          American Federation of State, County and Municipal Employees 
          Anti-Defamation League
          Asian and Pacific Islander Wellness Center
          California Council of Community Mental Health Agencies
          California Immigrant Policy Center
          California LGBT Health and Human Services Network








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          California Pan-Ethnic Health Network
          Compassionate Community Care
          Equality California
          Gay-Straight Alliance Network of California
          Lavender Youth Recreation and Information Center
          LGBTQ Center of Long Beach
          Los Angeles LGBT Center
          Lutheran Social Services of Northern California
          Maitri AIDS Hospice
          Meals on Wheels of San Francisco
          Mental Health America of Northern California
          National Center for Lesbian Rights
          Native American Health Center
          NorCal Mental Health America
          Openhouse
          Our Family Coalition
          Queer LifeSpace
          Rafiki Coalition for Health and Wellness
          Rainbow Community Center of Contra Costa County
          Sacramento LGBT Community Center
          San Francisco Community Clinic Consortium
          San Francisco Democratic Party
          San Francisco Department of Aging and Adult Services
          San Francisco Drug Users Union
          San Francisco HIV/AIDS Provider Network
          San Francisco LGBT Community Center
          San Francisco Suicide Prevention's HIV/AIDS Nightline
          Shanti Project
          SteppingStone Adult Day Health
          Trevor Project
          UC San Francisco Center of Excellence for Transgender Health
          UC San Francisco LGBT Resource Center
          Westside Community Services AIDS Case Management & Home Care  
          Program

          OPPOSITION:  (Verified 9/8/15)

          None received


          ASSEMBLY FLOOR:  69-0, 6/1/15
          AYES:  Achadjian, Alejo, Baker, Bloom, Bonilla, Bonta, Brough,  








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            Brown, Burke, Calderon, Campos, Chang, Chau, Chávez, Chiu,  
            Chu, Cooley, Cooper, Dababneh, Daly, Dodd, Eggman, Frazier,  
            Cristina Garcia, Eduardo Garcia, Gatto, Gipson, Gomez,  
            Gonzalez, Gordon, Gray, Grove, Hadley, Roger Hernández,  
            Holden, Irwin, Jones-Sawyer, Kim, Lackey, Levine, Linder,  
            Lopez, Low, Maienschein, Mathis, Mayes, McCarty, Medina,  
            Mullin, Nazarian, O'Donnell, Olsen, Perea, Quirk, Rendon,  
            Ridley-Thomas, Rodriguez, Salas, Santiago, Steinorth, Mark  
            Stone, Thurmond, Ting, Waldron, Weber, Wilk, Williams, Wood,  
            Atkins
          NO VOTE RECORDED:  Travis Allen, Bigelow, Dahle, Beth Gaines,  
            Gallagher, Harper, Jones, Melendez, Obernolte, Patterson,  
            Wagner

          Prepared by:Arthur Terzakis / G.O. / (916) 651-1530
          9/8/15 14:55:34


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