BILL ANALYSIS Ó ----------------------------------------------------------------- |SENATE RULES COMMITTEE | AB 959| |Office of Senate Floor Analyses | | |(916) 651-1520 Fax: (916) | | |327-4478 | | ----------------------------------------------------------------- THIRD READING Bill No: AB 959 Author: Chiu (D), et al. Amended: 9/4/15 in Senate Vote: 21 SENATE GOVERNMENTAL ORG. COMMITTEE: 12-1, 7/14/15 AYES: Hall, Berryhill, Block, Gaines, Galgiani, Glazer, Hernandez, Hill, Hueso, Lara, McGuire, Vidak NOES: Runner SENATE APPROPRIATIONS COMMITTEE: 5-0, 8/27/15 AYES: Lara, Beall, Hill, Leyva, Mendoza NO VOTE RECORDED: Bates, Nielsen ASSEMBLY FLOOR: 69-0, 6/1/15 - See last page for vote SUBJECT: Lesbian, Gay, Bisexual, and Transgender Disparities Reduction Act SOURCE: Author DIGEST: This bill enacts the Lesbian, Gay, Bisexual, and Transgender Disparities Reduction Act and requires four specified state entities - the Department of Health Care Services (DHCS), the Department of Public Health (DPH), the Department of Social Services (DSS), and the Department of Aging (CDA) - to collect voluntary self-identification information on sexual orientation and gender identity, beginning no later than July 1, 2018. Senate Floor Amendments of 9/4/15 include additional legislative intent language; add language holding the departments harmless when collecting data under certain circumstances; add a provision exempting the collection of certain data that would AB 959 Page 2 permit identification of individuals or would result in statistical unreliability; and, make other minor clarifying changes. ANALYSIS: Existing law requires a state agency, board, or commission that directly, or by contract, collects demographic data as to the ancestry or ethnic origin of Californians, to use separate collection categories and tabulations for each major Asian group and each major Pacific Islander group. This data is required to be made available to the public in accordance with state and federal law, except for personal identifying information, which shall be deemed confidential. This bill: 1)Requires, to the extent permissible by federal law, the DHCS, the DPH, the DSS, and the CDA, in the course of collecting demographic data directly or by contract as to the ancestry or ethnic origin of Californians, to collect voluntary self-identification information pertaining to sexual orientation and gender identity. 2)Provides that the four state entities identified above may, but are not required to, collect demographic data under the following circumstances: a) Pursuant to federal programs or surveys, whereby the guidelines for demographic data collection categories are defined by the federal program or survey. b) Demographic data is collected by other entities, as specified. 3)Requires collected data to be reported to the public in accordance with state and federal law, except for personal identifying information, which shall be deemed confidential and shall not be disclosed. 4)Prohibits reporting of data that would permit identification of individuals or would result in statistical unreliability. Also, permits aggregate data reporting, as specified. AB 959 Page 3 5)Stipulates that the four state entities identified above may use information voluntarily provided about sexual orientation and gender identity only for demographic analysis, coordination of care, quality improvement of services, conducting approved research, fulfilling reporting requirements, and guiding policy or funding decisions. 6)Makes it explicit that all information about sexual orientation and gender identity collected pursuant to this bill must be used only for purposes specified in this Act and requires the four state entities identified above to come into compliance with the provisions of this Act as soon as possible, but no later than July 1, 2018. 7)Finds and declares that due to the sensitive general nature of data relating to sexual orientation and gender identity and the need to protect the safety of those who would provide voluntary self-identification information pertaining to their sexual orientation and gender identity, it is necessary to prohibit the public disclosure of personal identifying information that would allow the identification of an individual who provided voluntary self-identification information pertaining to sexual orientation and gender identity. 8)States legislative intent that the state departments identified above utilize existing work and research, including, but not limited to, referencing research on promising and community-defined practices and stakeholders when developing questions to collect voluntary self-identified information pertaining to sexual orientation and gender identity. In addition, encourages the departments to urge other entities to voluntary collect information pertaining to sexual orientation and gender identity. 9)Contains various legislative findings and declarations relative to the limited data available for Lesbian, Gay, Bisexual, and Transgender (LGBT) communities and due to historical systematic exclusion of data collection of LGBT communities, significant disparities in their health and welfare have been prolonged compared to the broader community. Also, declares that it is in the best interests of the state AB 959 Page 4 to respect, embrace, and understand the full diversity of its residents and to collect accurate data to effectively implement and deliver critical state services and programs. Background State government agencies routinely collect demographic data on race, ethnicity, gender, and disability on a wide variety of state forms and surveys. The purpose of this data is to help better understand disparities in underserved communities. Current law only requires any state agency, board, or commission that directly, or by contract, collects demographic data to separate the collection of this data by major Asian groups. The law is silent on demographic data collection based on sexual orientation or gender identity. Purpose of AB 959. According to the author's office, this bill seeks to reduce health and well-being disparities for LGBT communities by ensuring that sexual orientation and gender identity data is collected on a statewide basis by key government agencies that deal with health and human services. The author's office states, "Due to the systematic exclusion of data collection of LGBT communities, significant disparities in their health and welfare have been prolonged compared to the broader community. LGBT communities face disproportionately high rates of poverty, suicide, homelessness, isolation, substance abuse, and violence, and low rates of health insurance. These issues are more prevalent for youth and seniors, communities of color, and transgender and undocumented communities. Collecting voluntary data on sexual orientation and gender identity is a necessary first step to understand the extent to which LGBT communities are experiencing disparities and whether government programs are effectively reaching LBGT individuals in need of care and assistance." The author's office emphasizes that the recent amendments are intended to provide greater flexibility for the identified departments in AB 959 to comply with the requirements of this bill. In addition, certain provisions hold the identified departments harmless if any future programmatic changes that include meeting the requirements of this bill are rejected by the federal government. Furthermore, certain other provisions AB 959 Page 5 hold the departments harmless in cases where the departments do not collect the data themselves but instead receive their data by other entities that collect the data directly. Prior Legislation SB 280 (Lieu, 2014) would have authorized, until January 1, 2015, the application form for insurance affordability program coverage to include additional voluntary questions on sexual orientation and gender identity or expression. Also, would have required, effective January 1, 2016, the application form to include voluntary questions regarding demographic data categories, including race, ethnicity, primary language, disability status, sexual orientation, gender identity or expression and other categories recognized by the federal Secretary of the Department of Health and Human Services. (Died on Senate Appropriations Committee Suspense File) AB 1208 (Pan, 2013) contained similar provisions to SB 280 (Lieu, 2014). (Vetoed by the Governor who stated, "the state does not need to mandate these requirements in law as DHCS and Covered California already have the authority to modify these types of questions on the form, and they can work constructively with stakeholders to decide what is necessary to change for 2015 and beyond.") SB 416 (Kehoe, 2011) would have required the statewide Health Interview Survey and the Behavioral Risk Factor Surveillance System to include specified information related to sexual orientation or gender identity. (Vetoed by the Governor who stated, "what particular questions should be in these health surveys is better handled by the current process, not the Legislature or the Governor.") AB 1878 (Lieu, 2010) would have required all California agency forms that ask for demographic information to include sexual orientation or gender identity. (Died on Assembly Appropriations Suspense File) FISCAL EFFECT: Appropriation: No Fiscal Com.: Yes Local: No AB 959 Page 6 According to the Senate Appropriations Committee: DHCS: Costs to implement this bill would not be significant. Programming costs to add new fields into California Healthcare Eligibility, Enrollment, and Retention System would be approximately $170,000 (General Fund, federal funds, and/or special funds). DPH: One-time costs of approximately $165,000 (General Fund) to make programming changes to Birth and Death Registration systems; ongoing costs for Center for Health Statistics Information related activities would be minor and absorbable; one-time programming costs of approximately $160,000 (General Fund) to update the Genetic Disease Screening Information System; and, ongoing costs of approximately $105,000 (General Fund) related to printing an enlarged form, but only some of these ongoing costs can be attributed to this bill. DSS: Significant one-time costs to the extent that county welfare department information technology systems would need programming changes to provide for the collection of sexual orientation and gender identity information. (General Fund) CDA: Minor and absorbable costs to implement this bill however, there could be significant costs if certain systems need to be updated to allow for this functionality. (General Fund and/or federal funds) SUPPORT: (Verified 9/8/15) AIDS Legal Referral Panel Alcohol Justice American Civil Liberties Union of California American Federation of State, County and Municipal Employees Anti-Defamation League Asian and Pacific Islander Wellness Center California Council of Community Mental Health Agencies California Immigrant Policy Center California LGBT Health and Human Services Network AB 959 Page 7 California Pan-Ethnic Health Network Compassionate Community Care Equality California Gay-Straight Alliance Network of California Lavender Youth Recreation and Information Center LGBTQ Center of Long Beach Los Angeles LGBT Center Lutheran Social Services of Northern California Maitri AIDS Hospice Meals on Wheels of San Francisco Mental Health America of Northern California National Center for Lesbian Rights Native American Health Center NorCal Mental Health America Openhouse Our Family Coalition Queer LifeSpace Rafiki Coalition for Health and Wellness Rainbow Community Center of Contra Costa County Sacramento LGBT Community Center San Francisco Community Clinic Consortium San Francisco Democratic Party San Francisco Department of Aging and Adult Services San Francisco Drug Users Union San Francisco HIV/AIDS Provider Network San Francisco LGBT Community Center San Francisco Suicide Prevention's HIV/AIDS Nightline Shanti Project SteppingStone Adult Day Health Trevor Project UC San Francisco Center of Excellence for Transgender Health UC San Francisco LGBT Resource Center Westside Community Services AIDS Case Management & Home Care Program OPPOSITION: (Verified 9/8/15) None received ASSEMBLY FLOOR: 69-0, 6/1/15 AYES: Achadjian, Alejo, Baker, Bloom, Bonilla, Bonta, Brough, AB 959 Page 8 Brown, Burke, Calderon, Campos, Chang, Chau, Chávez, Chiu, Chu, Cooley, Cooper, Dababneh, Daly, Dodd, Eggman, Frazier, Cristina Garcia, Eduardo Garcia, Gatto, Gipson, Gomez, Gonzalez, Gordon, Gray, Grove, Hadley, Roger Hernández, Holden, Irwin, Jones-Sawyer, Kim, Lackey, Levine, Linder, Lopez, Low, Maienschein, Mathis, Mayes, McCarty, Medina, Mullin, Nazarian, O'Donnell, Olsen, Perea, Quirk, Rendon, Ridley-Thomas, Rodriguez, Salas, Santiago, Steinorth, Mark Stone, Thurmond, Ting, Waldron, Weber, Wilk, Williams, Wood, Atkins NO VOTE RECORDED: Travis Allen, Bigelow, Dahle, Beth Gaines, Gallagher, Harper, Jones, Melendez, Obernolte, Patterson, Wagner Prepared by:Arthur Terzakis / G.O. / (916) 651-1530 9/8/15 14:55:34 **** END ****