BILL NUMBER: SB 1334	INTRODUCED
	BILL TEXT


INTRODUCED BY   Senator Walters

                        FEBRUARY 21, 2014

   An act to add and repeal Section 125001.5 of the Health and Safety
Code, relating to public health, and making an appropriation
therefor.



	LEGISLATIVE COUNSEL'S DIGEST


   SB 1334, as introduced, Walters. Newborn screening program.
   Existing law requires the State Department of Public Health to
establish a program for the development, provision, and evaluation of
genetic disease testing. Existing law establishes the continuously
appropriated Genetic Disease Testing Fund (GDTF), consisting of fees
paid for newborn screening tests. Existing law states the intent of
the Legislature that all costs of the genetic disease testing program
be fully supported by fees paid for newborn screening tests, which
are deposited in the GDTF. Existing law authorizes moneys in the GDTF
to be used for the expansion of the Genetic Disease Branch Screening
Information System, as specified, to include cystic fibrosis,
biotinidase, and severe combined immunodeficiency. Existing law
exempts the amendment of contracts for this purpose from provisions
of the Public Contract Code that establish standards for contracts
and require the Department of General Services to approve these
contracts. Existing law also exempts the amendment of contracts for
this purpose from standards for personal services contracts and from
provisions that give the California Technology Agency authority over
the application of information technology for state agencies.
   This bill would require the department, until January 1, 2020, to
expand the screening of newborns in Orange County to include
screening for Krabbe disease, and would exempt the amendment of
contracts for this purpose from provisions that establish standards
for contracts, require the Department of General Services to approve
contracts, and give the California Technology Agency authority over
information technology projects, as described above.
   By authorizing moneys in the continuously appropriated GDTF to be
used for screening newborns for this additional disease, the bill
would make an appropriation.
   Vote: majority. Appropriation: yes. Fiscal committee: yes.
State-mandated local program: no.


THE PEOPLE OF THE STATE OF CALIFORNIA DO ENACT AS FOLLOWS:

  SECTION 1.  This act shall be known, and may be cited, as Jacquelyn'
s Law.
  SEC. 2.  Section 125001.5 is added to the Health and Safety Code,
to read:
   125001.5.  (a) The department shall establish a pilot program to
expand in Orange County the screening program established in Section
125001 to include the screening of newborns in that county for Krabbe
disease.
   (b) Moneys from the Genetic Disease Testing Fund may be used to
implement this section and the pilot program may be implemented
through the amendment of the Genetic Disease Branch Screening
Information System contracts and is not subject to Chapter 3
(commencing with Section 12100) of Part 2 of Division 2 of the Public
Contract Code, Article 4 (commencing with Section 19130) of Chapter
5 of Part 2 of Division 5 of Title 2 of the Government Code, or any
policies, procedures, regulations, or manuals authorized by those
laws.
   (c)  This section shall remain in effect only until January 1,
2020, and as of that date is repealed, unless a later enacted
statute, that is enacted before January 1, 2020, deletes or extends
that date.