BILL ANALYSIS AB 1519 Page 1 Date of Hearing: January 16, 2008 ASSEMBLY COMMITTEE ON ARTS, ENTERTAINMENT, SPORTS, TOURISM, AND INTERNET MEDIA Betty Karnette, Chair AB 1519 (Ma) - As Amended: January 7, 2008 SUBJECT : Human Remains: Commercial Display. SUMMARY : Prohibits any person from displaying human remains to the public for commercial purposes without first obtaining a permit from the county. Specifically, this bill : 1)Prohibits display of human remains to the public for commercial purposes without first obtaining a permit issued by the county. 2)Provides that a county may issue a permit to any person only upon a determination by the appropriate county agency or department that the person has provided valid written authorization to display human remains for consideration from specified individuals. 3)Provides exceptions from the permit requirement for display of human remains that are more than 100 years old, consist solely of human teeth or hair, are part of the ordinary display or viewing of the deceased at a funeral establishment or part of a similar funeral or memorial, are an object of religious veneration, or are in the possession of a museum facility, with certain qualifications. 4)Provides further exception for utilization of human remains consistent with the Uniform Anatomical Gift Act. 5)Defines "commercial purposes" as either a display for which the public is charged a fee or other consideration as a condition of viewing, or display for which an exhibitor earns a profit. 6)Defines "exhibitor" as a person or entity who shows or puts on, or contracts to show or put on, a temporary public display of human remains. 7)Defines "museum facility" as a public or private nonprofit institution that is accredited by the American Association of AB 1519 Page 2 Museums or is a part of an accredited college or university, and that is organized on a permanent basis for essentially educational or aesthetic purposes and that owns or uses tangible objects, cares for those objects, and exhibits them to the general public on a regular basis. 8)Provides a civil penalty for violation of $10,000. 9)Makes legislative findings and declarations. FISCAL EFFECT : Unknown. COMMENTS : 1)Recent Amendments: This bill was substantially amended on January 7, 2008 to delete its entire prior contents and insert the present text. 2)Author's Statement : According to the author, "(E)xhibitors, who often obtain the bodies from China, run galleries and displays of unwilled remains in distasteful poses generating millions in revenue claiming the case of providing the public with health awareness. While the exhibits may be informative, China's gross human rights violations has led to a general public concern that bodies exhibited were once prisoners, government and political dissenters, hospital patients and the poor. Without written consent from the deceased, one is hard-pressed to find evidence that the bodies in the displays wanted to be there. It is honorable to donate anatomical gifts in order to continue to advance medicine and science education for the betterment of society. However, the State must protect unwilling and unclaimed bodies from the unethical treatment and exploitation of profiteers. "AB 1519 protects the State's Anatomical Gifts and future potential donors. The generosity of anatomical donors provides medical students with information to save lives, further research, and prevents diseases. This generosity cannot be abused. Donors must feel secure that their anatomical donation will not end up being paraded around the state on display. AB 1519 respects the ethical tradition of maintaining the integrity and rights of bodies after death." AB 1519 Page 3 3)Historic background : The issue of using human remains for medical and educational research is a long and sometimes contentious one. "The empirical study of human anatomy took off with Leonardo da Vinci's sketches in the 15th century; the earliest extant articulated skeleton dates from 1543. As medicine advanced, physicians were expected to have a systematic understanding of the human body's inner workings. By the beginning of the 19th century, Europe's demand for human remains far outstripped supply. In England, home of many of the world's preeminent medical institutions, grave robbing became so commonplace that certain cemeteries were famous for battles between grieving families and marauding medical students. To contain the problem, the government passed the Anatomy Act of 1832, allowing doctors to take any corpse that was left unclaimed in a city morgue or hospital." (Carney, Inside India's Underground Trade in Human Remains, Wired Magazine Issue 15:12, http://www.wired.com/medtech/health/magazine/15-12/ff_bones?cur rentPage=all, retrieved January 9, 2008.) At this same time in history, the famous utilitarian philosopher Jeremy Bentham made perhaps the first anatomical gift donation, giving himself to his university in June of 1832. He did so saying, "the object being two fold first to communicate curious interesting & highly important knowledge & secondly to show that the primitive horror at dissection originates in ignorance & is kept up by misconception and that the human body when dissected instead of being an object of disgust is as much more beautiful than any other piece of mechanism as it is more curious and wonderful?" (Marmoy, The Auto-Icon of Jeremy Bentham at University College, London, http://www.ucl.ac.uk/Bentham-Project/info/marmoy.htm#6b , retrieved January 9, 2008.) His body remains on display to this day. While passage of the Anatomy Act of 1832 may have put an end to grave robbing in England, allegations continue to exist of grave robbing in other countries, especially in India and China, where commercial trade in human remains continue. (Carney, IBID.) 4)Controversy Over Source of Bodies in Plasticized Human Remains Exhibitions: According to its website, promoters of Bodies Revealed (one of several exhibitions touring the world which presents plasticized human remains to the public as AB 1519 Page 4 entertainment) claim that, "Using real human specimens, painstakingly prepared and respectfully displayed, the Bodies Revealed exhibition lets visitors of all ages explore deep within the human body in a way that informs but doesn't overwhelm?.Our bodies are our most important possession. They are intricately developed machines; more complex and wondrous than all the computers and gadgetry we surround ourselves with today. Yet many of us do not know what makes us tick-how we function, what we need to survive, what destroys us, what revives us. Bodies Revealed, made possible through the process of Polymer Preservation, is an attempt to remedy that lack of knowledge by presenting to the lay public material that was previously only available to the medical profession: a three-dimensional tour of the human body." Presentation of the human body in this "plasticized" form is profitable business. One tour, Bodies?The Exhibition, reportedly earned revenues of $30.1 million dollars last year, and cleared $7.4 million in profits. There are 11 such traveling shows currently on tour. The sources of the bodies for the displays are two facilities based in Dalian, China. One is operated by Dr. Gunther von Hagens, the man who invented the plasticizing technique which these shows exploit. The other is Dr. Sui Hongjin, a former von Hagens employee. Dr. von Hagens claims to have signed authorization from the persons in his touring exhibition, granting permission for his use of their bodies. However, Dr. Hongjin admits that the persons in his shows were once indigents or unclaimed bodies given to him by authorities with rights of disposition; therefore he does not have permission from the donors or their families to display the remains. Critics assert that many of the remains used in the exhibitions are actually those of executed prisoners. The criticism may have some foundation. The Chinese city of Dalian is close to three prison camps. According to Amnesty International, China's communist authorities account for 75% of the world's executions, purportedly executing 3,400 people in 2004 by shooting them in the head or the back of the neck. In 2004, after a story in the German magazine Der Spiegel asserted that some bodies in the Chinese facility had bullet holes in their skulls, Dr. von Hagens agreed to return seven corpses to China -- admitting that the bodies used in his exhibitions might have come from executed prisoners. AB 1519 Page 5 In response to the criticism, the Chinese government has set out strict new procedures for the use and international transport of human corpses and body parts, to be effective as of August 1, 2006. "A new regulation bans the trade of corpses and commercial activities involving corpses. No organization or individual is allowed to accept body donations except medical institutes, medical schools, medical research institutes and forensic research institutes. Those in receipt of bodies should arrange interment after use. The exit and entry of bodies for medical and scientific purposes must be approved in accordance with the Regulation on Human Hereditary Resources issued by the State Council and the Quarantine Regulation of Special Medical Items issued by the Ministry of Health and the State Quality and Quarantine Administration. No other reasons for international transport will be approved, says the regulation." (Xinhua News Agency July 15, 2006, China Regulates Use, Int'l Movement of Bodies and Parts, http://210.72.21.20/english/government/174802.htm, retrieved January 9, 2008.) 5)Uniform Anatomical Gift Act (UGA) Establishes Procedure for Donation of Bodies: California's Uniform Anatomical Gift Act regulates the donations of anatomical gifts. The act specifies who may make a gift and directs the manner in which a gift may be made, amended, revoked, or refused to be made. The National Conference of Commissioners on Uniform State Laws (NCCUSL) first proposed the Uniform Anatomical Gift Act in 1968, and it was adopted by all 50 states. The act was subsequently revised and adopted by 26 states in 1987, including California. In 2006, NCCUSL proposed revisions to the act to help to address the critical need for donated organs by providing additional ways in which individuals may make organ, eye, and tissue donations. Last year, California joined other 16 states in revising our version of the Uniform Anatomical Gift Act (Health and Safety Code section 7150, et seq.), with passage of AB 1689 (Lieber), Chapter 629, Statutes of 2007. That measure, in relevant part, clarified and broadened the ability of potential donors and their survivors to donate bodies and organs for medical and scientific purposes. a) Who Can Make Anatomical Donations ? Persons who may make AB 1519 Page 6 an anatomical gift before a donor's death are: the donor if the donor is an adult, or if the donor is a minor and is either an emancipated minor or between 15 and 18 years of age, only upon the written consent of a parent or guardian. Also, an agent of the donor can make an anatomical gift, provided that the power of attorney for health care or other record expressly permits the agent to make an anatomical gift. (Health and Safety Code section 7150.15) An anatomical gift of a decedent's body or part may be made by any member of the following classes of persons who is reasonably available, in the following order of priority: (1) An agent of the decedent at the time of death who could have made an anatomical gift under subdivision (b) of Section 7150.15 immediately before the decedent's death. (2) The spouse or domestic partner of the decedent. (3) Adult children of the decedent. (4) Parents of the decedent. (5) Adult siblings of the decedent. (6) Adult grandchildren of the decedent. (7) Grandparents of the decedent. (8) An adult who exhibited special care and concern for the decedent during the decedent's lifetime. (9) The persons who were acting as the guardians or conservators of the person of the decedent at the time of death. (10) Any other person having the authority to dispose of the decedent's body, including, but not limited to, a coroner, medical examiner, or hospital administrator. (Health and Safety Code section 7150.40) b) How Is An Anatomical Gift Made ? A donor may make an anatomical gift either by indicating that the donor has made an anatomical gift on the donor's driver's license or identification card, directly through the Donate Life California Organ and Tissue Donor Registry Internet Web site, in a will, or during a terminal illness or injury of the donor, by any form of communication that clearly expresses the donor's wish. If made orally, the statement must be addressed to at least two adults, at least one of whom is a disinterested witness. The witnesses shall memorialize this communication in a writing and sign and date the writing. (Health and Safety Code section 7150. 20) AB 1519 Page 7 Persons authorized to make anatomical gifts on behalf of the deceased (as authorized in Health and Safety Code section 7150.40) may do so by a document of gift signed by the person making the gift or by that person's oral communication that is electronically recorded or is contemporaneously reduced to a record and signed by the individual receiving the oral communication. c) What Limitations Exist For Uses of Anatomical Gifts ? Under the UGA, an anatomical gift may be made to any of the following persons named in the document of gift: a hospital, accredited medical school, dental school, college, university, or organ procurement organization, for research or education, an individual designated by the person making the anatomical gift if the individual is the recipient of the part, subject to certain conditions, and, an eye bank, or tissue bank. (Health and Safety Code section 7150.50) Further limitations are placed upon the uses donation may be put to. The UGA specifies that an anatomical gift may only be used for transplantation, therapy, research, or education. In addition, sale or purchase of human body parts is expressly prohibited by law. (Health and Safety Code section 7150.75) While county coroners are required to cooperate with procurement organizations to maximize the opportunity to recover anatomical gifts for the purpose of transplantation, therapy, research, or education, they are expressly forbidden from removing any part of a decedent under the jurisdiction of a coroner for transplantation, therapy, research, or education unless the part is the subject of an anatomical gift. The body of a decedent under the jurisdiction of the coroner shall not be delivered to a person for research or education unless the body is the subject of an anatomical gift. (Health and Safety Code section 7151.15) 6)Position of Anatomists: The American Association of Clinical Anatomists (AACA) is the only national association which represents anatomists. According to their website, it exists to "advance the science and art of clinical anatomy and promote the personnel and resources associated with its practice, to encourage research and publication in the AB 1519 Page 8 discipline, and to maintain high curricular and professional standards in the teaching of anatomy." The AACA does not yet have a formal position on AB 1519; however, their Anatomical Services Committee has drafted the following position in response to the issues addressed in AB 1519. It is worth noting that the co-chair of this committee, Brandi Schmitt, is the System-wide Director of Anatomical Services for the University of California. "Draft language on human body display from AACA: " The AACA supports the education of the general public through the display of human anatomical materials, provided those materials have been legally and ethically obtained. "The displaying venue should comply with federal, state, and local laws and regulations on public health and safety. "Rather than for mere monetary gain or exhibitionism, the public display of these materials should be dignified, respectful, and fulfill a stated scientific educational objective. "The study of human anatomy for the purpose of improving the human condition, benefits us all." 7)Author's Amendments : The author will offer the following amendments in committee: a) Page 3, line 4, strike the words "earns a profit" and insert, "accepts payment or other consideration" b) Page 3, line 17, following the word "county," insert the phrase, "where the human remains will be displayed" c) Page 3, line 28, following the word, "paid," insert the phrase, "or offered other consideration to" d) Page 3, line 33, strike the words "ten thousand dollars ($10,000)" and insert, "up to ten thousand dollars for each violation" AB 1519 Page 9 e) Page 3, line 36, strike the phrase, "the appropriate county agency or department," and insert, "county health department" REGISTERED SUPPORT / OPPOSITION : Support Laogai Research Foundation Opposition None on file. Analysis Prepared by : Dana Mitchell / A.,E.,S.,T. & I.M. / (916) 319-3450